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Community => The Lounge => Introductions => Topic started by: Ganja on Thursday, July 25, 2013, 18:14:58 PM
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Hello, my name is Adrien, i am 19 years old and i have been diagnosed with Hodgkin Cancer.
I am not sure why i am writing this right now, maybe i just need some attention, maybe i just need to talk about it or perhaps i just needed u guys to know.
I thought maybe i could explain to you what this actually is, but i am not sure myself. Feel free to check it out.
https://en.wikipedia.org/wiki/Hodgkin%27s_lymphoma (https://en.wikipedia.org/wiki/Hodgkin%27s_lymphoma)
Loads of words i don't understand nor translate ...
Nothing better than the internet when you are feeling lonely, and tonight is one of those nights, so i am going to talk about it a bit, feel free to close this topic and go back to AA anytime ;)
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It all started approximately 5 months ago. Every day i felt weaker and exhausted. My first thought went to mononucleosis, as it was the only 'disease' i knew about that made you feel tired. After a visit to my doctor, and a blood-check all he could see was 'a little infection'. He told me to come back in a month to see how it's evolving, which i did.
That's when he took a second blood-check, to compare it to the first one. In the meanwhile i had some symptoms like hot nights, scratching legs and most important of it, a bump next to my shoulder, considered as a lymph (not sure about the translation). The next morning, when i woke up ( next afternoon actually, because I used to sleep over a very long time due to my tiredness) the doctor called me to announce me this 'news'. Never will i forget the intonation of his. He told me "Adrien, your blood has been analyzed and there clearly is something not normal, I give you strong advice to go the the emergencies right now to have (one more) check on you"
I really had no idea what I was going through, but i knew it was not going to be funny. I went to the hospital as he told me, and since then i have had loads and loads of tests, scans, blood-checks etc. Stayed there for two days/nights until the doctor told me i probably had the Hodgkin disease, also called the Lymph-cancer. On that really moment i still wasn't really sure what this was all about. She did not pronounce the word 'cancer' so i had no idea what this Hodgkin disease was. It's only few hours later when i talked with my mother, who apparently had made research about it, that i understood what was going on.
Soon i had a 'port a cath' implanted in my chest. Couldn't find the English word for it, so i will just send you a random picture.
(edit: I clearly still don't understand how to put a link on this forum, ain't working for some reason, go check it out by yourself :) )
Basically it's implanted in people with cancer do they don't have to kill your entire arm every time with the needles, and i think it hurts less.The operation of implanting me that thing is the most horrible memory i have for now. I was supposed to be 'locally-asleep' but i wasn't completely so i never felt something so painful. It's the kind of things that happen only in movies you know haha, it was crazy.
Afterwards scans had to be made to identify the 'grade' of the disease and the location of the infected lymphs. I was told the grade was not the worst, but that I had a huge lymph in the mediastinum, near the lungs. This meant that my treatment had to be hard. There were some meetings with my doctor and parents at the hospital, to explain how this was going to work. I was told, there would be no radiotherapy, as it leaves you with too much drawbacks.
I am currently under a BEACOPP chemotherapy, which is pretty hard. My treatment consists in 6 cycles.
If you are interested i am going to explain you the cycles i go through. Are you interested? Yes? Oh cool, here it come.
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One cycles consists in 3 weeks.
- Week 1
I have to go to the hospital on Monday, Tuesday, and Wednesday to receive my chemotherapy there.
On that Monday i need to stay the entire day, but on Tuesday and Wednesday y presence there is only required for a few hours. During that week i feel 'ok'. I'm not in my best mood but i don't really have nausea that week, only tiredness.
- Week 2
I only have to go to the hospital on Monday. This is pretty much a horrible week. During those days, my immune system is at his weakest point. I am like a 'virus-magnet' at that moment. I have to avoid contact with people, and when i go to the hospital i need to ware a mask, because of how inactive my immune system is. Symptoms of that week are exhaustedness, like I have never endure before. I didn't even think it was possible to be so tired. It's like i am paralyzed of my legs, i can barely move from my bed. And sadly another symptom is throat/mouth-ache. I get a lot of painful ulcers in my mouth. There is not really something to do against it, apart from taking mouth-bathes like they call it. During this week I have to inject me with some product that will make my white blood cells increase (the lack of white blood cells is the main reason of my inactive immune-system during that week)
- Week 3
This is my 'holiday-week' :) I don't have to go to the hospital if anything goes right, i can see friends and family again, and i am feeling pretty normal, so that's maybe the week where I don't spend my entire days on AA ;)
And then the cycle ends, and a now one begins. Now i am at my 4th cycle, 2nd week (which will nearly end, finally)
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You have maybe read it on the link i have posted (not sure anyone will read it, but hey, who cares) but the Hodgkin disease has a good cure percentage. I am not troubled about the fact that the treatment is efficient, and i have adopted a positive attitude toward the disease since day 1. "Your mood can change a lot of things in this therapy" they told me so many times now, so i try my best to stay positive. Sure it is not always easy, it happens i have some of those days/nights like now, feeling a bit alone and being jealous on other people on holiday.
Now, this is the end of my story for now. All i can say about all this, is that i have a lot of respect towards all the staff at the hospital. The doctors, nurses, everybody is just fucking awesome every time i go there, so big up to them :D
I'll gladly answer to some questions if you guys are interested, and maybe someone else want to tell his story?
Good night
Adrien
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Pretty bold of you to share your story. Good for you :) I wish you luck man and if you wanna talk on MSN or whatever, let me know.
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Wow man bigtme Wow !!!! It is without a doubt very bold of ya to share....... Im with spanky on this one,,, hope all is well and goes great for ya... HOOAH !!!!!!!!
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Tiredness, but cant sleep, Excessive weed smoking, Live off energy drinks, love to bitch and moan about stupid things, I have gameritus :(....
On a serious note, cheers for sharing dude, hope all goes well, good luck in your battle, if you need anything, let me know.
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I don't know what to say... But I wish you a fast & full recovery and keep being awsome!
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Keep positive man, you'll win it :up:
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Ja hallo! Dit had ik niet verwacht.... ben ff sprakeloos!
Zucht...
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Wow what a schock :cry:
I prayed and told God that i didn't care about my VIP Poster rank,
i told him you deserved it more than me and that i love to argue with
you on the forums so i begged him to heal you as quick as possible :D <3
May the energy of all members of the community combine and converge to your
body and defeat the enemy inside of you :makemyday:.
HOOAH !
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Best wishes to you, Ganja. Keep your head up and kick Hodgkin´s ass!
HOOAH!
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good luck in your battle, and be strong . i`m sure that u will be fine ! good luck ! best wishes !
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Best wishes Adrien <3
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First of all i wish you the best , hope the chemotherapy will bring you in a better possision .
I know there are 2 way s for Hodgkin 1 you can heal from and 1 not looks like you have the one whit HOPE! .
The ex wife of my brother had it to starting under here throat but chemo dit work, and she is ( a little less condision) but she is oke now.
Its good to write it away i hade to 1 1/2 year sumthing but i spear you my story, i olso make a long letter whit pictures from the doctors and adder fun stuff and it helps to gif it a place.
So if you feel to do it agan GO for it!! i have the link i willl look for this summtimes
I will think about you and turn my thumbs for you that dutch for Led it work for you.
Good Luck m8
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That's why you need to have fun in life, stay positive and do the things you want to do, because your life can end any fuckn minute.
Beterschap man, komt sowieso goed :)
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Stay strong my dude.
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GL with everything :up:
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Thanks for the wishes soldiers ! :style:
Pretty bold of you
Made me remember I forgot to mention I lost my hair after few weeks of chemotherapy :cry: :D
your life can end any fuckn minute.
I appreciate your concern :D
Its good to write it away i hade to 1 1/2 year sumthing but i spear you my story, i olso make a long letter whit pictures from the doctors and adder fun stuff and it helps to gif it a place.
Je kan het me altijd via PM vertellen in het Nederlands hoor
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I appreciate your concern :D
is in t algemeen he :P
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For those who knew about my little disease, I want to inform you that all the chemo's are done. I'm considered as "cured" but have to go to the hospital every now and then to see if there's no 'coming back' of it. I am still immune depressive, so I can't eat what i want, can't go where i want and so on, but I can go to school again and see people hehe.
Thanks for those who send me some message to ask some news
:)
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For those who knew about my little disease, I want to inform you that all the chemo's are done. I'm considered as "cured" but have to go to the hospital every now and then to see if there's no 'coming back' of it. I am still immune depressive, so I can't eat what i want, can't go where i want and so on, but I can go to school again and see people hehe.
Thanks for those who send me some message to ask some news
:)
I'm glad for you.
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I'm sure all community wishes you the best. Just to let you know, you can always talk to me or anybody from the community. I hope you are going to be okay, I am glad that you were positive and strong against your threat. Good luck and keep living.
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Great to hear Ganja!
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I hope the very best for you ganja, glad to hear you beat it, stay strong though your rough time, it will only get better for you ;-)
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Great news man :cheer:
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Jeez man, every time i see you here or in game your a verry funny and positive player, hard to believe that you had that problem when i look at you playing. I had an eye problem like 7 years ago and had to have a cornea transplant, nothing as bad as yours but i could gone blind because of it, and i went for a whille verry bad thinking that i could not see my two girls growing, but now that i was able to pay for both operations, and theyr not cheap, i almost see 100%.
Thats why u kill me sumtimes wickid lol ( joke...).
Stay positive Ganja, dont make the same mistakes i did wich was to keep it to myself, we'r are a comunity of players, but i like to think that sometimes just to talk about it here can help us.
I wish you the best and good games in the future.
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Jeez man, every time i see you here or in game your a verry funny and positive player
I think 1% of the players will agree with this :) I'm often raging ingame or whatever but irl i'm a positive guy :)
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I think 1% of the players will agree with this :) I'm often raging ingame or whatever but irl i'm a positive guy :)
The 1 % that think that are either drunk or stoned, wich is 99% of them lolz!
Keep the owning dude! :style:
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I think 1% of the players will agree with this :) I'm often raging ingame or whatever but irl i'm a positive guy :)
Woot im the 1% :cool:
Hehe
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het zal wel een pak van je hart zijn dat je dat gedeelte achter de rug hebt. en je weer en beetje naar het onbezorgde leventje kan keren. heb je het nog gevierd met je familie.
op je gezondheid (https://aao25.com/forum/proxy.php?request=http%3A%2F%2Fimageshack.us%2Fscaled%2Flarge%2F194%2Fx8ds.jpg&hash=aa48cb3cb730e954be32d32efcd574a0) (http://imageshack.us/photo/my-images/194/x8ds.jpg/)
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:banned: :lock:
Woot im the 1% :cool:
Hehe
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Behind the most jolly of personalities there's usually a bit of a darker side, which is why they usually appreciate the little things in life more, at least that's how I've experienced it so far in my now short life.
Great to hear that you're declared 'clean' now. In my family there's a certain gene which causes similar diseases to occur as well, so sadly enough I'm way too familiar with the process you've been through.
Keep the good work up, and hope your social life & education will only get better and better henceforth.
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(https://aao25.com/forum/proxy.php?request=http%3A%2F%2Ft1.ftcdn.net%2Fjpg%2F00%2F44%2F79%2F26%2F400_F_44792645_SsYTzZIYxOIeOlE6Y4AQN87pWwBrLyjd.jpg&hash=98d1c59c37a2fbbba7c734d1d6a2362d)
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Maare gaan we nog is een biertje drinken om het te vieren?
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Maare gaan we nog is een biertje drinken om het te vieren?
Jij rijdt?
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We blijven er wel een nachtje crashen dan, dan hoeft niemand bang te zijn te moeten rijden ;)
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Glad you are in remission. Hope all is well.
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Ik wil best heen rijden, maar terug niet.... dus ja beter ergens een slaapplek zoeken!
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We blijven er wel een nachtje crashen dan, dan hoeft niemand bang te zijn te moeten rijden ;)
kdacht dat iedereen overal heen ging met de fiets in Nederland :D
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kdacht dat iedereen overal heen ging met de fiets in Nederland :D
Ja en alle belgen zijn dom :D
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ganja you are not alone buddy I'm like you in some case ... I got a "cancer" myxiodes liposarkom g2 in my left knee back sides.i got many luck to keep my left leg besides me in the last summer. I'm finished with al therapies and got in my case a 100 rate of handicap especially in germany a brandmark of "G "of this art of sickness is more and more 1 of the most important things in the near things young can got here. I wish you the best in your case at moment! I"'m right now 34 years old and i got a wife with an almost a cute 10 month old little boy I'm happy about this. nothing else matters...right now for me. in ts you can see a pic of him under avatar of me if I am online!
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Adrien it's been about 7 months, you've been out of chemo for a while, how are things going?
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Not well to be honest :(
Thought about writing back in this topic but didn't really had the courage to do so. After all my chemo's I was kind of "cured" but the cancer came back around April this year.
Now I've started other chemo's which are even harder but I guess I'm still fighting huh ...
In a few weeks, after my 3d cycle of chemos I'll have to do a double Bone Marrow Transplant (according to google translate) which will kinda kill me but it's for the better so I guess it's the good thing to do ...
Thanks anyway for taking news Spank, appreciate it
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best of luck man, hope you beat it.
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I'm sorry to hear that, that's real serious shit. It's good to see you're still around though :)
Keep us updated.
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Jeez didn't expected this news! I hope for the best!
Take care man!
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having been through what ganja is going through now, except the double marrow transplant, it's gonna fucking suck, like I told u before. It's gonna be terrible, and you're gonna hate it but you're gonna love to hate it eventually, which is what survivors do. Keep fighting padawan, and maybe u one day will learn all those dropshots you still fail terribly at.
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Bad news man but i believe in jou. The way you are fight back and leds hoop its the last time. Gl Mr ganja
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The hardest battles are given to the strongest soldiers, wish you all the best Ganja.
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Hey m8 you are in our heart and prayers..stay stong m8 we need you around...besides we dont have anyone else to call a hacker lol
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its nice for you to share. maybe most of us dont now each other but after so many years playing its nice to see a tight community. And everyone nows Ganja. always whit lots of words to say :) keep your head up and fight back ganja... you will get over this and prevale. perseverance m8 :up:
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I can understand you, and i am so sorry because you are really good and great guy. My mother had cancer before 4 years now she have it again, she had survived than she will again, she pass all you pass right now. My message for you is be strong and passionate never but never don˙t surrender fall back or something like that, i know you can pass this one part off your life and i am sure you will have smile on your face. Just never don˙t quit from your self or say "ohhhh i can˙t" forget for that. Many people needs you and love you and many will fight for you and be with you. Imagine our world without you it would be sad . Soooo SOLDIER head UP put smile on your face even it is hard to do and easy to say for me but i know you can and you will do it, this is just one part off your life pass it and go forward don˙t stop don˙t look back :) ! I wish you all the best, and lots of girls m8 :D ( i am sure in hospital they have some awesome girls :D ) ! HOOOOOAHHHHHHH FOR YOUUUU ! !
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Stay strong and be positive you will beat it!! I like this sentence: Stones in the road? Keep them all, one day you will build a castle!
Get well soon and all the best m8!!!
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It's sad to hear...i wish you the best, be strong and fight like the soldier we know.
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Get well soon ganja,
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Ca me fait vraiment de la peine que cette merde reprenne le dessus :/
Mais t'est un vrai gars, tu va l'niker ce putain de cancer, met-lui
coup-d't?te balayette et c'est bon :D
Allez, courage, tu vas assurer je l'sais ;)
Je t'embrasse tr?s fort.
zoxee
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sad to hear that.
I wish you all the best and all the luck on this planet.
be strong man !!!
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I read on the shoutbox that Rollos said Adrien had died last night.
Any input would be appreciated. I know he's been ill for a long time and it wouldn't be such a surprise if the news was correct, but I still do hope he's still live and kicking somewhere.
As I said on the shoutbox, since he said he's getting out of the hospital, I assumed he'd been getting better, but the assumption might have been wrong.
Rollos, if you're reading this can you comment on the info?
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Like I said in the shoutbox, this is a mistake/bad joke. I'm am alive (not kicking ass though).
For those who have followed my situation, here's a little info about the present:
I have just finished my second bone marrow transplant. After 4 weeks in a isolation room at the hospital (where I was still able to play AA and have fun with you guys) I came home monday. I'm not in great shape, the chemo's and the transplant have fucked up my body but it's for the good cause, and with a bit of time (few months) I will get my weight back and my body will have regenerated a bit !
I hope this was the last time I had to spend so much time at the hospital ( if everything runs fine, it was! )
I still have to go once a week for check ups and for blood transplants but the nurses there are so sweet with me, that's it's not disturbing to go there ;)
I'll have a PET-scan in 3 months to see the progress of the cancer and hopefully it's gone, cross fingers with me :) I'll certainly keep in touch those interested !
Thanks again for the support, it is much appreciated <3
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i do cross fingers for sure. good luck!
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-wA'tNc.Rollo$!a^-10h [ASSIST]
vanoke im not rollo im rollos gtfo and die with ganja too.
elcome back ganja hope you will be oke in future.
and rollo fuck you.
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I wish you good luck with getting well, my friend! :)
But I'm not sure you'll be able to retire from AA as you hope. It's just so addictive. :D
Only the future will tell us this, though :)
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Hope everything turns out good ganja.